Hey all,
Cilla and I have have had a busy week. We went to Cape Cod for a couple of days, Sunday through Tuesday. We stayed at a B&B in Brewster and had a wonderful time going to the beach at sunset, taking a boat ride, and having a great dinner with Cila's brother Frank and his wife Martha who have a summer home near where we were staying. It was really good to get away for a couple of days! We came back on Tuesday night. Cilla had her weekly medical treatment appointment at BU Meidcal Center on Wednesday. We were visited at the hospital by Cilla's brother Bill who entertained us with his stories and adventures, including encounters with bears in New Hampshire! It was great to have him there. Then we met with Cilla's doctor who said that the Amyloidosis hasn't gotten any worse and decided to add a streroid (Dexamethasone) to her weekly treatment along with the Velcade (chemo). .The goal is to reduce her Kappa Light Chain numbers down to the 25-30 range from the current number which is 59. The Kappa Light Chain number is what they use to actually measure what the Amyloidosis is doing. It's like golf, the lower the number the better. The doctor also ordered another Kappa Light Chain lab test which we'll get the results from next week
Cilla is feeling pretty tired today but doing well overall. We'll continue to keep you posted on what's going on.
Best to all,
Steve