Thursday, October 14, 2010

More Information

HI...Yesterday was another "lost week-end" at the Boston Medical Center, but we did leave with some good information.  We had an early apppointment which meant we found a perfect parking space right away, didn't have to wait long in the reception area and got one of the nice rooms in the stem cell area.  Blood work done in a timely manner, Steve went to Dunky's and brought back a breakfast sandwich and tea for me.....which was fortuitous since the hospital food we were offered later was gross. Steve splurged and had TWO donuts and coffee.  Anyway, the rest of the morning went smoothly and we were DONE by about 11:30......except that an appointment had been made for us to see Dr. Berks the pulmonologist (lung guy) at 2:30.  So we hung out and waited. I remarked that he'd probably want me to get an x-ray, and sure enough, after he arrived at 3:30 and spent about an hour with us....he really is a good guy.....we were then sent off for a chest x-ray.  The results showed that there is more fluid on my lungs than the doctors had realized...which accounts for the horrendous cough, wheezing and shortness of breath I've experienced over the last six weeks or so.  So, extra lasix for me and I"ll be seeing Dr. Berks again soon! :)  When we finally got out of there around 5, we despaired about the traffic on the Expressway.  However, we used the HOV lane down to the split and just narrowly avoided an accident scene and were home in less than 40 minutes....a world record, I believe!
So.....one more treatment in this cycle, then the 3 day evaluation  (including a bone marrow biopsy) and then "We'll see", as my father used to say! 
I have lots to look forward to over the next few weeks.....Pats game on Sunday, Halloween with the grandchildren, and by early November (Sarah's 30th birthday) I hope to have good news and a plan of action.
Thanks again, everyone, for your continued thoughts, prayers, delicious suppers and snacks, cards, etc. Last Sunday afternoon we drove up to Rockport and Gloucester for an Artisans Tour.  We saw some great pottery, paintings and incredible North Shore ocean views. Good for the soul. The Labyrinth Walk at church last Sunday night was a wonderful treat for the soul,too.  Looking forward to the healing services starting next Monday, the 18th.  Come on down!   All these experiences I savor in my heart every day as I continue my R&R at home and wait for life to get back to "normal"!
Love, Cilla  xxxxxxxx

4 comments:

  1. Cilla,
    I think of you so often, you really have climbed a mountain with all you are going through. I hope you get this ok, I want you to know I send my hugs and my love.
    Cindy Rayner

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  2. Hang in there Cilla. A cure is soming. I can feel it.
    Love you,
    Jackie

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  3. Hi Good report...I tried to respond last week and my message disappeared. Very proud of your good attitude, the Black Irish humor helps also!!

    Love,
    Suzie

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  4. Hi Cilla,
    You are one strong woman and I admire your attitude through this. Think of you often and will continue to pray for your health to return.
    I have newborn "twin" grandsons. 9/9/10 Mason and Kieran were born to Laura and Cris. Just thought I would share some happy news. Love and prayers to you. Louise Cence

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