HI, everyone.....
Today was the end of a five month chemo cycle to see if Velcade (the chemotherapy drug) and Dexamethosone (the steroid) would "cure" or put me into remission for Amyloid. Unfortunately, the latest "Kappa Light Chain" blood test didn't show any change from the last time or for basically the last six or eight weeks. So, the good side is that it's "stable"; bad side is the doctors need to come up with another idea or two for treatment.
Next week I will be going to Boston Medical Center for three days in a row (M-T-W) for a reavaluation. The tests will be basically what they did during my first three day visit last May: Bone Marrow Biopsy, a flood of urine tests, pulmonary tests to see what my lung capacity is, echocardiagram, and probably others I can't remember now. The doctors will then gather all this info and meet together on Friday afternoon. I will hope to get the results sometime on Friday; if not, it will be Monday.
So, if they decide to give me "a break", then Steve and I will try to plan a last minute vacation someplace....it will depend on whether I am allowed to travel by air or by land. Any ideas, anyone??? Someplace warm would be my first choice. That would be tough if I have flying restrictions. :)
Yesterday was a really wonderful day. I was invited to lunch by a couple of people from my RE/Max office and it turned out to be about 25 brokers from three different offices!! They all came to say how much they missed me and to wish me well. It was overwhelming....... my "pals". I do miss them. I work with the best Realtors in the area and the fact that they would take two hours out of very busy days to come and say HI really meant a lot to me. I got home about 2 and went to bed and slept until 6!!! Steve and I then caught up with the final episode of "Mad Men" which I could talk and talk about, but I won't. If anyone wants to dish with me about what the heck Don Draper is possibly thinking, send me an email........And we dislike Betty even more! :)
OK, when I know my next treatment options, you will be the first to know. Keep the prayers and good thoughts coming. I will need them for sure.
xxxxxxxxxxx
Cilla
Hey Cilla, you are in our thoughts and prayers constantly. And Maria and I are bummed that Madmen's season is over. I think Don is confused man who is letting his libido do the thinking for him, and Betty is disturbed, for sure.
ReplyDeleteRich Bevilacqua
Great update Mom...damn those Kappa Chains...we'll get them soon enough! Matt & I just watched Mad Men last night and I couldn't stop thinking about it all night long!!! Betty is truly psycho, but Don has serious issues as well. Love Joan & Peggy of course...we'll dish on Friday. xo
ReplyDeleteHey Cilla, Sending you love and light from London. Glad to hear this round of treatment is over. I know a creative option is on its way to you. I am heading to stonehenge tomorrow and will ask the spirits for healing energy to be sent your way. Much love, Monica
ReplyDeleteNo matter what those kappa chains are saying, you are still a champion!! Look at all you have been through in the past 9 months!!!!!! INSPIRATION! Continue to Stay strong!!! As for vacas....so many options far and near!!!! Find out if u can fly or not and we will chat when we are out clebrating your BABY GIRLS 30th BIRTHDAY!!!! :)
ReplyDeleteAnd as for Mad Men...is it wrong that I have not even heard of it?? :/
Hi Cilla,
ReplyDeleteJust found the blog and want you to know we are thinking of you and praying for you.
Ronni and Greg
Great entry Mom! Your strength and optimism are AMAZING and inspiring to all of us. I am woefully behind on Mad Men- need to catch up! Love you- Carrie
ReplyDeleteHi Cilla...great update, looks like some things are going well and other things need a bit more divine intervention. Keeping you in my thoughts and prayers, hoping you get a little well deserved vacation time for you a STeve.
ReplyDeleteLove you, Carroll Anne
What a wonderful surprise that lunch must have been. Glad this round is over for you. Continued good thoughts and prayers. Judy Daniel
ReplyDeleteThis maybe the end of one cycle -- but I'm sure it will be the beginning of another. You and Steve are amazing -- what strength and always humor.
ReplyDeleteLove,
Pat
Hi Cilla, I know you are busy this week with your follow up evaluation and I just wanted you to know I'm praying for you everyday and rooting for positive results! They are the best at BU and you are in good hands. I'm sure they will decide what's best for you. You are so strong, have great faith, and an incredible support system with you every step of the way no matter what the outcome. You can beat this...I know it! Can't wait to hear where you decide to take your well deserved vacation! I'm sure Steve needs one just as badly as you do! We are going to Portland, OR and Whistler in December. Not sure how much skiing i'll be doing, but it will be great to get away... and make snow angels of course! Air hugs, Cheryl
ReplyDeleteHi Cilla and Steve,
ReplyDeleteDave and I are just getting home from a sunny, warm vacation in Aruba. I hope you both can go somewhere nice on your well deserved vacation.....long over due! We have been thinking of you both......thanks for keeping us all posted with your new results after your three days of testing.........keep your positive attitude and thoughts....it is wonderful medicine.
Love, Linda