HI..it's been a long time since I updated this blog. I have spent the last 6 weeks just getting stronger and feeling better. Almost normal.....
I had an evaluation last Monday at BMC to see if I was OK to go on the Revlimid trial. I actually was not looking forward to going back on the trial because the drug wreaks such havoc on my body. I know it was a big factor in my hospitalization. At the evaluation I had another "Kappa Light Chain" test which measures the amount of Amyloids that are in my blood. When I started being treated at BMC a year ago May, the number was about 250. Today it is 44 and has stayed in the range of 50 to 44 for about 5 months. ("Normal" is 20/25)
So, the doctors have declared me "Stable".....no more treatments at this time. Just my usual meds and watching some other vitals, but mostly just being "normal". I have started to do some short trip daytime driving and will graduate to highway and maybe night driving soon. You might see me at the grocery store or CVS or the Christmas Tree Shop! Steve and I really hope to take a long delayed major vacation later this month. I still have to "take it easy" and not try to jump into my former life with both feet. Plus, this "Stable" thing is going to be on a month by month basis. We will go back to BMC in early November for more Kappa LIght Chain testing and other organ tests. But for now, I am going to revel in being "Stable" and just living with this disease.
What makes me most excited about being stable is that Sarah and Matt are expecting their first baby in March and I was feeling sad and frustrated that I might not be able to help them. But if all goes well, I will be able to be a good Nana and help with the laundry and the rocking!
Thank you everyone for your continued thoughts and prayers. Keep them coming....Steve and I will still need them.
Love, Cilla
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