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| Brenda & Cilla hangin' out at BU |
I was fortunate to join the two ladies for an extended lunch break and got to spend some "QT" in the BU Medical Center chemo treatment ward. We gossiped (exactly how many twins are there on Arrowhead Lane in Walpole??), talked business & current events (where is all the Haitian aid money? What's with all these blogger's making movies & millions and how can we do that???), and had tasty (if not messy) sandwiches from Blunch...Try the "Cilla" next time you are in there- cheddar cheese, artichokes, roasted red peppers & tomato panini with extra, extra napkins!
Medical recap based on our visit from "Dr. S.":
- Cilla has recently been experiencing some pretty significant coughing and wheezing fits. Dr. S. said the wheezing/coughing and evidence of fluid increase over the last week or so is definitely related to being on the "Dex" now for 4 weeks. She reduced the Dex (steroid) down to an "8" for today (last week was 10, she used to be on a 20 back in May/June) to hopefully help with the wheezing & coughing.
- The "tingling" in Cilla's hands & feet is also a direct result of being on the Velcade for as long as she has, however, there is nothing she can do unless she lessens the Velcade which Cilla does NOT want to happen. Cilla made it clear to Dr. S. that she will take the dose "as is!" despite these annoying (and sleep depriving) side-effects.
- Dr. S said Cilla is STRONG and doesn't complain and that she "is doing very, very well"!
- Dr. S. said Mom could probably fly somewhere or "take a break" soon...but TBD
- Dr. S sends her support to all, especially to "Mr. Weatherbee" who had to work today...I think she might have a little crush...but who doesn't love Steve??? :-)
- Chemo will continue to be every Wednesday until October 20th (Oct. 6th, 13th & 20th).
- Cilla will undergo a three-day evaluation in the BU Amyloid Research Center beginning on Oct. 25th...hopefully she'll get to spend some time with the "cute" clinical Dr. that Janet Robinson & Cilla liked so much. :-)
- On Friday October 29th, the "Amyloid Team" will do their weekly amyloid patient assessment meeting and determine the next path for Cilla. It could be more chemo, it could be a break, it could be a Stem Cell treatment...we are not sure yet so stay tuned!!!
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| Love to all & thanks for reading! -Sarah |
Sounds like you are doing everything right. Love and prayers to you and hoping you can get a much needed vacation in the near future. Love you, Carroll Anne
ReplyDeleteThanks so much for the update. Once I was out of jury duty, I came down with pneumonia and visiting my friend Cilla was not in the cards. Will try again after my kid-sitting stint in South Carolina. Hugs and love to you.
ReplyDeleteKathleen
Thanks for the update, very detailed, good job Sara. Looking mighty fine Cilla. It will be fun getting together with you and old friends over the weekend. Talk to you Saturday after Eric and Laura get in. Janet
ReplyDeleteyet another tough lady from walpole!! keep up the good work cilla! hope to see you on the 24th before the big 3-day!
ReplyDeletexoxo megs
Sarah did a great report. Terrific pictures of three beautiful ladies. Cilla you rule!!!! Your determination and fight is amazing.
ReplyDeleteLove to you all,
Pat
Our love and best wishes to you Cilla!
ReplyDeleteJennifer Sabatini Fraone
Keep up the good work. You are a tough cookie and I know you will be cured. A vacation sounds good.
ReplyDeleteHey Cilla, what a teriffic site. I have never blogged. Great to see your pics and get updates on your progress. Wanted to let you know you are always in my thoughts and prayers. Looking forward to that reunion. My love to all.
ReplyDeleteElyse
Hi Cilla, Cyd and I think of you all the time. Sounds like you are on an upswing. Have a lot to catch you up with. Would love to bring over dinner some day when it is good for you.
ReplyDeleteWe miss you.
Love Ceil and Cyd
ps I have been dating someone for the past 5 months